Monday, 2 June 2014

6 months post op right hip open SDD

Here I am 6 months post op to the day. In many ways the 2nd of December 2013 seems like a lifetime a go, but in other it just seems like yesterday.
 
So to sum up how I feel today. I feel OK. Whilst I would be love to sitting here writing "yes everything is wonderful and I am pain free and I can do everything like a normal person. That would not be true. But I am glad I had the surgery? a catorgoric YES!
 
I think it would be foolish to think that this FAI surgery would cure me of pain completely, especially when I know I have on going pathology in both my left hip and my lower back. BUT what this surgery does seem to be enabling me to do is use my muscles (in particular the glute ones) in a more correct way which in turn is strengthening my back.
 
I am able to do all things that I wanted to do. I am riding my horse for up to  an 40mins in walk, trot and canter. I am walking 4-5 miles a day. I am caring for all my animals , including our elderly pony in two weeks time I shall have my "big" horse Charlie Brown back on DIY livery at the farm. (he has been on full livery for 18 months as I could not care for him). I can do the garden (remembering to pace myself and switch activity often). I can go shopping with other people and not feel like a complete misery.  I am going to the gym two mornings a week and Pilates once a week.
 
Whilst the exercises I am doing  still seem quite basic compared to what I see other people doing at the gym, I do find them challenging , so I am happy that they are right for me. Just some of the exercises my gym instructor has me doing on a circuit type programme:
 
START warm at walk on treadmill, 4mph, gradient of 3 for 10 mins
FLOOR exercise: Clam Shells, side leg raises, sit up using the half balance ball type thing
STANDING Exercises : side walk with resistance band around ankles , and floor raises with band (hard to describe)
Weights for upper body
Squats, stilling using a bench to sit up and down from (when she first had me doing this, I literally could not do it without help. But I can now!)
END: warm down 5 mins on cross trainer (the first time I got on this I could not push the pedals fast enough to make the screen stop saying "sessions paused!")
 
I enjoy the Pilates but the one exercise that really bugs me is sitting from a lying down position, I just cannot do it, whilst other around me can.
 
With all this activity and exercise my op leg does get tired before the rest of me. I quite often have sore flexors, occasional tight IT band and also some groin pain but I can always put it down to what I did the previous day. No pain no gain!
 
My other hip gets quite pinchy and achy in the groin and it is interesting to feel how different the groin pain is in each hip. I deffinatly feel that my op hip is now taking some pressure of the other hip, which is great.
 
My back feels very achy a lot of the time but I have  lost the feeling of it being "about to go" , which I felt it was in a permanent sate of in the 6 months prior to the surgery. I find I am still taking paracetmol and codeine for my back and other hip.
 
I am very aware of my screws in my trochanter giving me some pain and discomfort in that area at night as I really like to lie on that side, I also find a lot of the side lying gym exercises difficult because of them and have to modify my position. A lady on our Open SDD face book page had her screws taken out at the same time as having the other hip done so I hope that I will be able to do likewise, but for now I can manage with them.
 
So there you go, I hope this comes across positive as I am happy with how I am doing and I am happy that I had the surgery. I shall check in again at 8 months post op. Thanks for reading.
Me and My Boy at 6 months post op.

                  

Sunday, 11 May 2014

5 months post open surgical disclocation/debridment surgery for FAI


It is Sunday 11th May 2014 I am now 5 months post op. On the whole I am doing well. I would say I am back to pretty much normal ROM with my op leg. Generally it is pain free. The area where the screw heads are located gives me pain if I  lie directly on it. Or bump into something with it. I can live with that so will not be looking at getting the screws out anytime soon. When I have my left hip done, I will have to decide if I can live with that uncomfortable feeling on both sides, so I guess I will get them taken out in the future.
My op leg continues to feel different from the other one. I can tell the muscles are still weak, the main ache being at the top, and slightly to the side of the front of my thigh. This comes on when I have done too much. There is also some pain in the joint itself, which comes and goes. It is different to the sharp stabbing groin pain I had pre op and is bearable. When it does happen, it hurts more as I take weight off that leg during walking. It can still often feel a little stiff when I stand after sitting for a while, as if the muscles need a moment to realise I have stood up. There is some occasional inner thigh and IT band pain, but again, not like pre op. All of this I can live with and presume will only continue to improve.

My back continues to be troublesome, but again, not as much as pre op. I do still get some pretty nasty SIJ pain, but I haven’t had the feeling of my lower back  about to go into spasm for a long time. Something tells me my back has its own issues to deal with. I know the disc bulge and degeneration in some of the lumbar vertebrae are there and will not go away. But my theory has always been that if my hips work better, may back has a better chance of becoming stronger. Hip surgery always seemed like the better option that spinal.

 My non op leg is pretty ropey, but I have less in the way of groin pain than pre op. I presume this is because it is now not working so hard/compensating for the other leg. I still get some nasty catching and clunking and the feeling of restriction in certain exercise or when riding my horse. I am getting alot of thigh pain at the moment. In particular a nasty sensitive skin / muscle sensation on my IT band and inside of my left thigh. I don’t know what it this is about and hope it will settle with some rest. I have to accept that my non op leg is not going to feel great and that I have to grit my teeth and bare it until I can have it fixed in Autumn 2015. But now that I know it can be fixed, it seems more manageable. Unlike this time last year I now know there is a way out to all this, that I am 5 months through my plan of action that started in December 2013.
Activity wise I am back to normal. I am back full time with my pet care business. Driving 30-40 miles a day, feeding cats, walking one dog 1.5 miles a day weekdays and then doing another 1.5-2 miles a day with the adhoc dogs on my books. With walking down to the farm to care for my  pony and walking my own dog, my pedometer ap is saying I am doing 4-5 miles a day during the week. Our elderly pony has been unwell and so has required a lot of extra care (much of it bending/crouching down bandaging his feet and putting on his hoof boots) and my hip has coped well with that. I am riding my horse twice a week and lunging him twice a week. I rode him out on the gallops last week and we had a  fantastic gallop, he was really gunning for it as it is something we have always enjoyed. You can’t beat that feeling of tears streaming down your face from the wind as your horse gallops so fast you think his legs will be fall off! And yet he is so well behaved all I have to do is sit back and ay whoooaa and he will drop gently back to a walk. My hip has also coped ok with that, a fair amount of stiffness delayed onset muscle fatigue but I can cope with that as surely it only means my legs are getting stronger again. The more I do it, the better it should get being my theory. No gain without pain.

Medication wise, I am still taking 20mg amitryptaline at night and usually 30mg codeine at night also. This is to help me sleep and help with hip pain on the left, not my op hip. I take paracetamol and ibuprofen in the day as needed, but not every day.
On  Thursday  I went for a gym induction at a local ladies gym. It wasn’t at all what I was expecting (from experience these things are given by super fit people who have no understanding of why I am so unfit and just involve telling me I am overweight and then showing me how t o use the gym machines). I am not a natural gym goer. I presume that if you work in an office all day, the gym is the perfect release. However, I am working outside/driving all day. I walk dogs for 3-5 miles each week day, look after my pony and ride my horse who is currently on full livery. For me the gym is an extra chore on top of everything else, and a drain on my limited energy. Outside of a gym I don’t actually feel that unfit, especially when I walking briskly with a dog or mucking out our pony. But as soon as I walk into a gym, I feel instantly overwhelmed by the fit toned types leaping around. I feel self conscious that I am so untoned and inflexible and a bit fat. The lady that runs this new gym, Rane, is in her late 40’s and yes she is super fit but she is also super nice and really interested in me and my case. She has 25 years experience in the fitness industry and keeps up with a lot of the advances and research, and seems to understand the link between physiotherapy and fitness. She was excited to see me x-ray and surgery pictures that I showed her on my iphone as I needed to know she understood what I had had done.

She first got me to stand on a step with my socks off so she could take a picture of the back of my heels. This picture shows how my Achilles tendon is pretty straight on the left and curved to the outside on the right, which is what is causing my right foot (op side) to stick out a 45 degree angle when walking and standing where as my left foot points forward. She says my arch is also collapsed on that side.  According to her, this is due to my muscle weaknesses in my hips and lower back. She doesn’t want me going on any gym equipment for a few weeks but instead to have two sessions with her a week to work one to one on some muscle activation exercises. At first I thought “oh right, and how much is that going to cost me” but, it will be all included in my gym membership of £24.99 a month, as will the Pilates sessions she also wants me to attend.
So what the hell, I will give it a go. This hip journey has lead me to be very cynical of health and fitness professionals (I still have the words of my  ex-chiropractor ringing in my ears from 5 years ago “I don’t see why I cant fix you” –  at that time I believed him. Now I am very sceptical of such statements). But like I say, I will give Rane and her gym a go. There are not extraordinary costs involved, she appears to know what she is talking about and I like her. It is nice to have a fresh set of eyes on me. So time will tell on that. I hope that perhaps this time in 6 months I have stronger  glutes and core muscles and that I am doing some cardio work to get rid of some of the excess weight that walking alone will not shift.
So that is my 5 months post open SDD surgery update, I hope I continue to improve and will update in a month or so.

Sunday, 6 April 2014

4 months post op, did someone flip the "you are fixed " switch?!

Well. I am feeling great. The crutch is gone. The groin pain is gone, and I am walking around like a normal person, and beginning to realise what life is like without thinking about chronic pain all the time.

If you had said I would feel like this now two weeks ago, I would have sadi don't be so ridiculous. But now. I am pretty much feeling fixed, not much else to add it really. I went to my last hydrotherapy session on 31st March. Felt strange to be leaving, considering what my goal was when I went there, and that was to be able to walk, well I certainly walked out of there with no crutches.
 
Next Monday I will go to the local swimming baths with my husband an have a go at doing a length or two, I have no idea what to expect. I will be starting with straight kick legs and use my kick board. I can also carry on with some of my hydro exercises there. But what I would really like to do is get swimming lengths to burn some calories and shift this extra stone of weight!
 
I have put both my crutches away in the spare room and plan to just start getting my life back on track. I can now ride my horse for 5 minutes at a time and will aim to increase  that. I can start gym exercises the next time   I go to land physio, and will then use the local pay as you go gym once a week.
 
Out come of my open SDD on  my right hip as of 4 months post op (17 weeks) is that my chronic groin and thigh pain is  gone,  my lower back still feels a little sore but is feeling much more stable. I am sure my back will continue to improve as I start to use my muscles properly -  I think I can confirm that my surgery has been a success.   I am kind of "signing off"  though I aim to check back at least every two moths with an update as I now need to see how my left hip pans out, all being well it can hang on until Autumn 2015 to get fixed.
 
Below is a snap of my pedometer Ap on my phone which I think tells the story of my post op recovery pretty well, I had my surgery in 2nd December. I am now averaging 6-10,000 steps a day.

Monday, 24 March 2014

15 & 16 weeks post open SDD hip surgery. First real set back.

I guess I should be thankful that I have got this far without any set backs to speak of, but it doesn't make it any easier when it actually happens.

Week 14 I felt good, despite a migraine , achy but good, got rid of the crutch, walked dogs, lunged my horse twice, started a dog training class with my little dog.

By the Friday morning I was absolutely shattered, the foggy cold was making my 9 inch scar across my hip burn and I just knew going to walk the one dog I had booked that day was the wrong thing to do. So I called in sick. The dogs owner was so very kind and understanding, she works part time but has a bad knee herself and so can't walk Henry. She has been so understanding through all this and is a loyal client, " oh don't you worry, stay in the warm and look after yourself, Henry can survive without his walk"

Over that weekend I did do a few jobs like spring cleaning my boarding bunny hutches and rearranging the bunny runs, along with some house work. I could feel the pain in my hip coming on when I think about but I wasn't prepared for the horrendous pain I was in by the  Monday afternoon.
 
The pain was a pinching/burning pain in my groin that shot down the inside of my knee. It was a 10/10 if someone had offered me a shot for morphine right then, I would have ripped their hand off. It was worse on walking so I got back on one crutch. When resting on the sofa it faded to a dull but pulsating stabing pain. I had a terrible night, could not get comfy and the pain kept waking me up. It was the same on the Tuesday morning. I had been taking ibuprofen & paracetomol but it would only last about 2 hours before the pain returned and I had to wait until I could  have another dose.
 
I emailed my surgeon. He said it was unlikely to be my trochanter due to the location of the pain and that it could be scars/adhesion tissue between the joint capsule and femoral neck. He advised to take NSAID's and ease off and let him know how I am in a few days. I carried on with Ibuprofen 3 times and day and paracetmol  but nothing settled it. I went to see the pharmacist to get some diclofenac (a different NSAID) the over the counter stuff is 12.5mg and you can only buy 18 tablets, so by taking 2 three times a day, that's 3 days worth. She said if not better after that go to GP and they would probably give me naproxen.
 
The Diclofenac did seem better and it lasted better to the next dose than the ibuprofen so I felt like I had got the pain under control I arranged  the rest of the week off from dog walking. I had a better night on the Tuesday night and a good rest on the Wednesday. By the Wednesday I night I was feeling a lot better although still using my crutch outside to take some pressure off my groin. Thursday morning I woke in pretty bad pain again and had to wait for my diclofenac pills to kick in before I could do much.

Friday morning was the first morning I woke that week and my first thought wasn't "tablets" - I think life is pretty desperate when that is you first thought. I was extremely grateful for that, but aware that my diclofenac finished that day and so I kept up the tablet regime, switching back to ibuprofen & paracetmol. I felt ok, a little twinging groin pain but a lot easier than earlier in the week. Saturday and Sunday came and thank heavens, my groin pain had gone, and I was back to walking without a limp.
 
I was conscious of the fact that I should not jump up and do everything I want to do just because that pain felt better, that I needed to pace myself this week to prevent a re occurrence. So I arranged to only do the dog walking on Tuesday and Thursday this week. I am learning how to pace myself, something I never seemed able to do pre diagnosis - probably because I could see no way out.
 
So overall at 16 weeks, I am pretty happy with my progress, despite last weeks set back. I think that the actual pain I had the surgery  for has decreased, my back feels a lot more stable and I haven't had one of those lightening bolt pains on my spine since I straightened out my limp. My old groin pain does feel better. I feel that the groin pain I had last week was something different, something to do with the surgical site.
 
So to sum up the overall achievements at week 16:
  • Off crutches
  • pretty much no back pain
  • old groin/hip pain gone
  • only taking pain relief when needed
  • can put my socks on (granted the op side isn't easy, but I  can do it)
  • I can do standing on one leg, flex to about 110 degrees, internal & external rotation
  • abduction does still pinch in the groin
  • Can walk a (slow) mile




Thursday, 20 March 2014

Banging My Head Against a Wall

That is how I feel, I really cannot believe how stressful every single thing to do with this journey is, it just couldn't be a made up story even if I tried.
 
So when I saw Mr F on the 17th Jan, he said he would like an x-ray at 12 weeks post op, but that it would be better for to get the GP to refer me to the local hospital rather than come all the way to Truro for it. He said just a screen shot of the xray would be fine, and I could email him the pic. Great
 
At 11 weeks I went to see my GP to request it. I have a copy of the notes and it reads "she wishes XR locally to check R THR position (Mr F had told her to get this done) yellow card sent WGH + req cc to him." Well apart from my GP thinking I have had a Total Hip Replacement- which I have not- all good.
 
Appointment came for 2 weeks later so x ray now is at 13 weeks post op. I asked radiographer about it being sent to Mr F and she didn't seem to understand what I was asking. She wouldn't let me take a pic of the xray and said a report would be with GP in a week to 10 days.
 
10 days go by. I hear nothing. Phone the GP receptionist. Again another person that doesn't understand what I am asking. She says the report is there, and she can email it to Mr F's secretary. I tell her the address. She says she cannot do that as it is a btinternet address and is not secure, Says she will fax it to the Duchy

14 days post xray and still nothing. I phone Mr F's secretary to ask for a different email address. She says best thing to do is get my GP reception to call the Duchy X ray department and ask for the IEP address to send the xray directly. Now I know how my GP surgery operate so I decide to do that bit for them. I speak to the Duchy X-ray department who seems surprised that Mr F's secretary isn't requesting the x ray herself on my behalf. Says it is very unusual for a patient to be doing this part their selves. Nothing surprises me anymore.  
 
Anyway, she is quite helpful and takes all my details and says she will contacts my local hospital where the x-ray was done and request it to be sent to Duchy. She say they may not have an IEP address, and in which case I will need to go the xray department and ask for a copy on disc and post it.
 
OMG what is all this crap about, it just seems like complete insanity. I would have been better off driving to Truro and paying for the x-ray myself. This last lady says she will call me back and let me know what is happening. I wont be surprised if she doesn't. So I am now 15 weeks post having my head of trochanter removed and screwed back on, and still haven't had my 12 week x ray checked.

Confused - I am  - I am now going to find a wall to bang my head against.

Update - the x-ray was finally received by the Duchy on the 22nd March, and Mr F has reviewed and all is well.

Friday, 14 March 2014

Nearly 15 weeks post open FAI surgery

What was supposed to be a 14 week post op update has turned into a nearly 15 week one as I have been so busy just getting on with things. We went away for a long weekend in our motor hone last week and I managed fine, I took my crutch and used it around the campsite and on our walks. Although I would often carry it instead of using it.

This week was to see me returning fully to my job of running my pet care business, so 5 day week 30 min walk for one dog, and extra half hour walk for three different dogs on 4 days if you see what I mean so 1hrs walking each day plus some cat feeds & pet transport , the usual paperwork and looking after my chickens, bunnies, own dog and pony.

Overall it has been a very good week despite the blip of a migraine. According to my pedometer ap I average 7000 steps a day, with a couple of 10,000 steps days. My limp is practically gone although my hip does feel pretty stiff, especially when I first stand up/first thing in a morning. I have been taking paracetamol and ibuprofen regular though less of the codiene. My back is feeling much now that I have straightened up in my walking.

I went to hydro on Monday and will continue with at as I can progress to harder exercises to strengthen my back. My land physio has set me 6 mins of interval training on my static bike along with some exercises on the Swiss ball.

This morning I woke and felt completely drained of energy and found getting up and getting going today pretty hard. I did a few jobs, but it is foggy here in the UK and it seems to make the scar and glute muscle very tender when I walk. So I am taking some sofa time with a hot water bottle under my bum!


So overall I am pleased with my progress despite this mini set back. I am still awaiting the results of my 12 week post op X-ray which was  actually done at 13 weeks. It was done at a local NHS hospital and still hasn't filtered down to my surgeon in Truro. The wonders of modern technology seem to be failing it!



Monday, 24 February 2014

12 Weeks Post Op - Is That a Light I See At The End Of The Tunnel?

Monday February 24th. Finally I have made it, 12 weeks post op today, and I do believe I am seeing the light. If I had written this post on Friday, I would be saying something completely different. If there is one thing I have learned through this it is how  just a few hours can make a difference in how you feel.

This last 3 weeks (So week 9-12) have been pretty dark. I lost my positivity that I had during my initial post op period and spent a fair old time crying and feeling sorry for myself. I think I had a right to feel sorry for myself though so I wont be to hard myself.
 
It has all been such hard work, getting off the 2 crutches and learning to walk again has pretty much been one of the toughest things I have ever done. I have ached all over, I have been so mentally and physically tired that I almost fell asleep waiting at a set of traffic lights in my car last week. I have really had to push myself with every inch of determination I could find. From getting up the morning to going to bed at night.  The last two weeks I have been trying to get back to normality (still on one crutch) by starting back work (I run a pet care franchise), looking after our elderly pony, going food shopping and doing the house work. I found I was planning my days down to the minute almost, setting out what I would do in a day in relation to the amount of mental and physical energy required. Any deviation in my plans would throw me. I wasn't enjoying anything I was doing.
 
By Friday just gone I was pretty much at my lowest ever, not helped by a visit to my disinterested GP, but I shall post separately about that. My back was killing me, my op hip was pinching, my non op hip was burning and quite honestly I was beginning to think I had made a big mistake. I was starting doubt my surgeon even, whom up until then I had hailed as my hero! I had pretty much decided that all this was a waste of time and money, a wild goose chase and that  I was never going to be pain free, that fixing my hip would never fix my back.
 
But enough of my woe
 
Throughout last  week I have been doing my Physio home work and forcing my body to walk correctly, 20 steps at a time, whilst I was walking a dog or walking about at home. It really hurt my hip flexors and hamstrings, and I was back to codeine and ice at night.
 
Then, when I woke up on Saturday morning, I got up, walked across the bedroom to look out of the window before realising I had just done that without a limp! I walked around the bedroom some more, yup. No limp, and not that slow either!!
 
So on Saturday we had family to visit and we all caught the coastal rider bus into Weston Super Mare, I even got up stairs with my one crutch.  We walked though town to what I do believe to be one of the best fish & chip restaurant  in the UK. I sat on the most uncomfortable wooden chair throughout, then we walked along the pier and back before catching the bus home. Now it wasn't easy, but It did not hurt. My back felt good, my op hip was not painful, just very tired by the end of it all.
 
Sunday morning came and I expected to be very stiff and sore from all the walking yesterday but I wasn't, I got up, went downstairs, walked around the kitchen and living room with no crutch all without a limp! It felt so good to be walking "level" again, not twisted or bent over, and my back really appreciated it. Now my limp did return, as after even short time walking with no limp, my leg muscles obviously got tired, but I still think it is fantastic progress and I can actually begin to imagine that this week I might even manage to walk outside, in public with no crutch and not look like cripple.
 
I rode my horse on Sunday again, for the first time since the head spinning escapade at 7 weeks. This time it was much easier to get on, my leg can now swing up a lot higher, but I am still grateful I have such a placid horse who doesn't mind me scrambling around on him! Once in the saddle, I felt more comfortable than last time but still pretty ineffective. I could not get my op leg in the right position to put my foot in the stirrup. My horse is western trained and so very sensitive to even the lightest cue. Whilst my husband still had us on the lead rein, I was able to  ask Charlie to walk on, turn left and right and stop through almost invisible squeezes of my lower leg, shift in weight, neck rein  and voice commands. I rode for a total  of 5 minutes. Any longer than that and I think my hip flexors would have started to spasm. So whilst I think I am long way off from a proper ride, I can now see that will be able to do this again. I have arranged that my lady who is currently exercising Charlie for me will continue to do so for the next 2 weeks, and then I shall take over his exercise sessions again. To begin with it will all be about me and my confidence I know, but Charlie and I have a good bond and I know he will look after me. I don't expect I will ride much to start with but we do a lot of stuff in hand on the ground so we have plenty to do. Afterwards, I had the tightness back in my groin, but that is something anyone that hasn't ridden for a while will get. My op hip felt a lot better that my non op hip, which benefited from ice and codeine that evening.
 
No hydrotherapy tonight as the pool has a leak, and I cannot make the session next Monday due my Nans funeral, so I will need to rearrange that. With hydro, I want to get the point where I can swim again, and then I shall stop going there and start going to our local swimming pool. I want to start swimming lengths to burn of the stone and a half of weight I have gained since last yea, when the only calorie burning exercise I could do was walking.  I have land physio with Donna this Wednesday, I am looking forward to that this time as hopefully I will be able to show her my normal walking!
 
So there we go, finally a positive post from me. I have no doubt I am going to have my fair share of down times in the coming weeks, but for now, I am going to try and enjoy this positive feeling whilst it lasts. Thanks for reading.